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Systematic screening for fragile X syndrome in a cohort of 574 mentally retarded children
Authors:B Gérard  MF Le Heuzey  G Brunie  P Lewine  MC Saiag  V Cacheux  F Da Silva  M Dugas  MC Mouren-Simeoni  J Elion  B Grandchamp
Affiliation:Department of Advanced Nursing, Ume? University, Sweden.
Abstract:The Sense of Coherence Scale is used frequently world-wide and is thought to be appropriate to any population. The purpose of this study was to highlight some of the potential limitations of the scale. Fifteen members of the Pentecostal Movement described several difficulties in completing the scale, especially items measuring manageability and comprehensibility. The following three statements indicate the nature of their interpretation of the items and the ambiguity of their answers as they argued that: (1) the concept of 'I' was interpreted as 'I and God', (2) it is not necessary to understand everything in life, because it is enough that God understands, and (3) life is meaningful in itself because of the salvation. According to this interpretation of the items, every proposed answer could be suitable and consequently, the scores can readily be misconstrued. Many of the respondents proposed additions or changes in the wording to make the scale more suitable. The strong ego-centred items seem to be inappropriate for the participants in this study and other populations might also be confronted with similar difficulties.
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