Adaptation of home nocturnal hemodialysis for a patient with epidermolysis bullosa: A call to personalized care! |
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Authors: | Rose Faratro Christopher T. Chan |
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Affiliation: | Division of Nephrology, University Health Network, Toronto, Ontario, Canada |
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Abstract: | Epidermolysis bullosa (EB) is a genetic disease characterized by skin fragility presenting with blistering and skin erosions. Recurrent skin infections are noted to be associated with the pathogenesis of IgA nephropathy. End stage kidney disease (ESKD) is a rare complication in patients with EB (Ducret F., et al., Nephrol Ther, 2008). Kidney replacement therapy is very challenging in this vulnerable patient population (Fine JD. et al., Am J Kidney Dis, 2004). Herein, we describe the adaptations to our home nocturnal hemodialysis training and operations to facilitate a patient with EB and ESKD to undergo personalized home nocturnal hemodialysis therapy. |
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Keywords: | administrative issues challenging patients home hemodialysis |
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